000 04379nam a22004935i 4500
001 978-94-007-1673-5
003 DE-He213
005 20140220083834.0
007 cr nn 008mamaa
008 110728s2011 ne | s |||| 0|eng d
020 _a9789400716735
_9978-94-007-1673-5
024 7 _a10.1007/978-94-007-1673-5
_2doi
050 4 _aRD120.6
072 7 _aMNQ
_2bicssc
072 7 _aMED085000
_2bisacsh
082 0 4 _a617.954
_223
100 1 _aLenk, Christian.
_eeditor.
245 1 0 _aBiobanks and Tissue Research
_h[electronic resource] :
_bThe Public, the Patient and the Regulation /
_cedited by Christian Lenk, Judit Sándor, Bert Gordijn.
264 1 _aDordrecht :
_bSpringer Netherlands,
_c2011.
300 _aVIII, 238 p.
_bonline resource.
336 _atext
_btxt
_2rdacontent
337 _acomputer
_bc
_2rdamedia
338 _aonline resource
_bcr
_2rdacarrier
347 _atext file
_bPDF
_2rda
490 1 _aThe International Library of Ethics, Law and Technology,
_x1875-0044 ;
_v8
505 0 _aBiobanks, tissue research and the public -- Public trust and public bodies: The regulation of the use of human tissue for research in the United Kingdom, Julie Kent, Ruud ter Meulen -- Biobanks and research: scientific promise and regulatory challenge, Bernice S. Elger, Nikola Biller-Andorno.- A sense of entitlement: individual vs. public interest in human tissue, Nils Hoppe -- Social aspects of biobanking: Beyond the public/private distinction and  inside the relationship between the body and identity  Federico Neresini -- The Rights of donors and patients -- One sample, one share! A proposal to redress an inequity with equity , Jasper A. Bovenberg -- Research on human biological materials: What consent is needed, and when. Eugenijus Gefenas, Vilius Dranseika, Asta Cekanauskaite, Jurate Jurate Serepkaite -- Reconsidering consent and biobanking, Emma Bullock, Heather Widdows -- What’s wrong with forensic uses of biobanks?, Claudio Tamburrini  Regulation of tissue research -- A unified European approach on tissue research and biobanking? A comparison, Katharina Beier, Christian Lenk -- Ireland and the United Kingdom’s approaches to regulation of research involving human tissue, Elizabeth Yuko, Adam McAuley, Bert Gordijn -- Legal and ethical aspects of biobanks for research in the European-Mediterranean area, Renzo Pegoraro, Allesandra Bernardi, Fabrizio Turoldo -- The circulation of human body parts and products: when exclusive property rights mask the issue of access, Florence Bellivier, Christine Noiville -- The question of anonymity and privacy in biobanking, Judit Sándor, Petra Bárd.
520 _aThe research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.  
650 0 _aMedicine.
650 0 _aTransplantation of organs, tissues, etc.
650 0 _aCytology.
650 1 4 _aMedicine & Public Health.
650 2 4 _aTransplant Surgery.
650 2 4 _aCell Biology.
650 2 4 _aBiomedicine general.
700 1 _aSándor, Judit.
_eeditor.
700 1 _aGordijn, Bert.
_eeditor.
710 2 _aSpringerLink (Online service)
773 0 _tSpringer eBooks
776 0 8 _iPrinted edition:
_z9789400716728
830 0 _aThe International Library of Ethics, Law and Technology,
_x1875-0044 ;
_v8
856 4 0 _uhttp://dx.doi.org/10.1007/978-94-007-1673-5
912 _aZDB-2-SHU
999 _c109544
_d109544